Posts Tagged With: life with crohns

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Posted in personal
September 5, 2017

High Functioning, Chronically Ill

I live with Crohns. I am also ridiculously high functioning when sick – I always have been. When I was first diagnosed with Crohns, it was because I had a really really low hemoglobin count that sent me to the hospital for a blood transfusion. Literally everyone was surprised that I was standing- yet, there I was, driving around town and taking my kids to school. I spent a year with cramps and nausea – sitting in parking lots until it passed, because I had things to do and nobody else to have take care of it all. The good…

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Posted in personal
March 15, 2017

Longing for the Sea.

Sometimes I dream of the sea. I can taste the sea air, feel the water on my body and the water fill me with comfort as I dive below. I’m never human in these dreams, but a creature of salt and spray. They’re wonderful dreams. I actually wake up rested, which is unusual. My mantra these days is that I’m tired of being tired. I’ve long been obsessed with the sea. As a young child, I thought it was because I was a child of the desert – and something I just was obsessed with when I moved to California.…

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Posted in personal
February 10, 2017

It’s 2017, and I’m falling apart.

The irony is, it isn’t even the political stuff. My name is Whitney Drake, and I’m probably in the worst shape I’ve been in the last 4 years. I apologize to anyone who liked hearing about my progress, because there’s a reason I haven’t written about living with Crohns – 2016 was a year of frustration and that’s hard to write about. But I’m getting ahead of myself. If you’re new to my blog, I have Crohns disease. It’s an IBD, an inflammatory bowel disease – which are a family of diseases where your body attacks part of your digestive…

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Posted in my health, personal, Pirate
November 13, 2014

I’ve got IRON, how ’bout you?

I have anemia. I’m still not sure if it’s because of the Crohn’s, or just exacerbated by it – but I have severe anemia. As in, when I went to the hospital (the trip that led to the Crohn’s diagnosis) my iron was so low that they had no idea how I was conscious. That first trip I had an infusion of iron (and blood!) and started taking iron pills. Daily. Then, for a period of time I was taking liquid iron (which is disgusting and stained my teeth), but I’d finally made it back into a normal range. Then…

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Posted in Mom, personal, Pirate
April 28, 2014

Six Months!

As many of you might remember, I went to the hospital mid January for a flare-up of my Crohn’s disease. A terrible, terrible flare-up that resulted in my being put on prednisone for awhile to help the inflammation go down. I envisioned a year of monthly doctor’s visits, monthly blood draws. And it seemed exhausting. So I got stuck with a needle a few times. One time I was given a hard time by the phlebotomist (I love that word) for having a different last name from my husband. Another time the phlebotomist just jabbed me in the vein and…

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Posted in my health, personal, Pirate
February 12, 2014

Insurance. Glad I have you, but you are a pain.

I am lucky. A lucky, lucky girl. We have insurance through TheBoy’s work, and it’s a pretty good insurance. That said, health insurance still manages to make my life difficult. TheBoy started a new job little over a year ago, and I wouldn’t say that I had any particular health issues around the time of the transition from one insurance to the other. Just the usual doctor’s visits. But I did have to notify my doctors of my new insurance, and there were a couple things that were misbilled. But I spoke with people at my old insurance and my…

4
Posted in personal
January 24, 2014

An Update!

I feel bad, but I never blogged that I came home from the hospital. But here I am! At home, living my life. Now, Crohn’s is a seriously weird disease. It doesn’t affect me constantly, and once you can get the pain of a flareup under control, life can be pretty normal. I honestly spent most of my hospital stay pain-free, watching television and sobbing over not being able to eat normal food. (You try eating nothing for a day, then only being able to have broth for another day) Right now I’ve been cleared to eat normally, but advised…