my health Category

October 10, 2019
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Crohns Recovery – Week 8 at the gym

Crohns recovery means something different every time I’ve brought it up. Up until this last year, recovery meant laying down until a flare passed. Or sometimes it meant switching to a new medicine or doing a course of steroids. Ultimately, after two separate hospital stays of 3 weeks each, which included two major surgeries, recovery meant something else entirely. I lost 30 pounds. It was nearly all muscle tone, but that was a lot of weight to lose. I lost all my stamina after a year or so of “taking it easy” while my body ate away at itself. My…

Crohns and the last year.

It’s weird to write this at last. I’ve told this story to so many people, in so many edited and abbreviated forms that I felt like I’d told you all what Crohns did to me. Here’s the short version, and I plan on writing about some of the things in more detail: last year I had a mystery discharge and after 4 months of constant doctors visits and lack of detection on what it might be, I went to the ER just before Halloween, to get a CT scan with contrast before having surgery for what we thought was a…

November 13, 2014
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I’ve got IRON, how ’bout you?

I have anemia. I’m still not sure if it’s because of the Crohn’s, or just exacerbated by it – but I have severe anemia. As in, when I went to the hospital (the trip that led to the Crohn’s diagnosis) my iron was so low that they had no idea how I was conscious. That first trip I had an infusion of iron (and blood!) and started taking iron pills. Daily. Then, for a period of time I was taking liquid iron (which is disgusting and stained my teeth), but I’d finally made it back into a normal range. Then…

February 12, 2014
2

Insurance. Glad I have you, but you are a pain.

I am lucky. A lucky, lucky girl. We have insurance through TheBoy’s work, and it’s a pretty good insurance. That said, health insurance still manages to make my life difficult. TheBoy started a new job little over a year ago, and I wouldn’t say that I had any particular health issues around the time of the transition from one insurance to the other. Just the usual doctor’s visits. But I did have to notify my doctors of my new insurance, and there were a couple things that were misbilled. But I spoke with people at my old insurance and my…

February 10, 2014
2

I didn’t think it would be this hard.

Since I was released from the hospital (wow, that makes me sound like a wild animal, doesn’t it?), I’ve been cooking for myself regularly. Which is fun. I love cooking, and it’s the easiest way for me to manage my restrictions and make sure I’m eating healthily. Is that a word? It is now. So I thought I’d start filming me making some of the dishes that I enjoy. Quick, flavorful stuff like ramen or curries- things that make your tastebuds happy, but won’t take up all of your time. But I’ve run into a couple problems. All my previous…

January 18, 2014
2

Two years and a month ago…

Two years and a month ago, I was nearing the end of doing NaBloPoMo- which was doing a blog post a month, like Nanowrimo. That year I’d been getting cramps, spiking fevers, and occasionally vomiting. But towards the end of November, it was so bad I went to the hospital. And after a lot of tests, and three days in the hospital, I was diagnosed with either Crohn’s or ulcerative colitis- they weren’t sure because the damage was so new. Nearly two years ago, I had a colonoscopy, and they still weren’t sure which I had, just that I was…